Archive for March, 2012
A major problem with cancer is that our immune system doesn’t just eat it, kick it out. For some reason, a healthy immune system which can easily shrink a tumor (by chewing off a cell at a time) just won’t eat the bad guy. It doesn’t recognize the tumor cells as ‘bad’.
Here’s a line of research to solve that problem.
Cancer cells wear sheep’s clothing. We need em naked.
Here it is, the juiciest (juiced) days of the cycle. An extra week of recover plus steroids are hitting… ambition flows… before fatigue spikes later in the week and it all goes to hell.
The to-do list, so dreary and ossified, suddenly interesting. Hey, maybe take out the trash and the dishes before installing the new living room lights and then some blog updates and those letters I’ve been meaning to write. No problem!
I’ll probably be waking up at 2am for the next three nights and then POW, right in the kisser.
Medicine, Cancer Fighting
Dr. James Malone:
An important part of the ESHAP regimen is the cisplatin that is given by continuous infusion for (hopefully) maximal cell death. Early studies gave cisplatin over 24 hours, but toxicity was high, so we now give it over several days in order to reduce toxicity.
Treatment Plan: I get these over five days, about four hours a day.
- Etoposide 40mg/m2/day IV Day 1, 2, 3 and 4 – what’s most different from the DHAP regimen before. Blows up cells in mid copy.
- Solumedrol 500mg/day IV Day 1, 2, 3, 4 and 5 – basically like the steroid prednisone
- Cytarabine 2Gm/m2/day IV Day 5 -To start immediately after Cisplatin completed. Ruins DNA synthesis so abusive to cancer.
- Cisplatin 25mg/m2/day IV Day 1, 2, 3 and 4; Given as a continuous infusion over 24 hours usually.
- Decadron (a bunch) – IV – more anti inflammatory steroid. Yes, I’m a bit more prone to swearing and cantankerous behavior.
This is the most justified but non-oncology treatment
Medicine, Symptom Fighting
Red Juice — nutrient dense, from The Wellness Kitchen in Atascadero, very fresh
Green Juice — nutrient dense, from The Wellness Kitchen in Atascadero, very fresh
Soy Powder — good proteins
Green powder — nutrient density
Low Carbs — anti inflammatory and low blood sugar
Carnitine – vs fatigue, promote bone growth
Glutamine – aid recovery and repair, speed healing
Astragalus Root – fight age or age reversal (teleromerase path)
Probiotics – gi tract, there’s 100 kinds so it’s Dr. Thoring’s favorite brand
Mushroom Immune Defense – one of the leading edges of immune support
Fish Oil - omega 3 fatty acid for lustrous skin and other less visible tissues
I’ve been recommended blood electrifying, canned asparagus, reiki, laughter yoga, ayahuasca, hyperthermia/IR treatment, essiac tea, Burzynski/antineoplastons, k0mbucha, laetrile, various visualizations, indigo biofeedback and the like. How to pick? On the passion of the messenger? On the pseudo-fu of the science? The beauty of the website? That it worked or seems to have worked for one other patient or a friend of a friend. There’s scant evidence once away from the clinical trials and established regimens. And there’s a known human bias for generalizing results (some treatment works for everyone) from very small survey sizes (it worked for this one person).
I like that, in the end, I get to choose. But as a man of reason I’m perplexed, there’s a lot of sign posts and not many maps. A maze with hawkers on every corner, selling hope. Who’s true?
The newest member of our household arrived with Claudia DeBorde. He sported a jaunty bow on arrival but I think he’s more hip with the SG11 badge featuring Curious George.
Check that famous brand…
It helps Dan study for his Master’s in Social Work over the wire from USC.
It’s on. Going to Duarte in mid April. Preliminary tests start after another round of chemo.
Dad and I went down there Tuesday (on 24 hours notice) and cruised San Dimas near the reservoir for trailer parking, Duarte for restaurants and the area of Azusa and Baldwin park for best routes to and from the hospital. Smog. Five lane highways. Somewhat hazy hills just four miles north. Gravel pits. LA river or some such canal. No worries, I’ll be focused mostly on four walls.
We left at 3:30 am from SLO, beat traffic, caught a breakfast slam, first in line at reception. Quick blood test. Long wait for Dr. Chen. Little if any new information. Approval to start preliminary tests.
- Move down there mid april. Parents bring their fifth wheel trailer.
- Week of prep and poison.
- Infusion of baby cells.
- 3 or 4 weeks in the hospital bubble.
- 3 months in a cottage on the City of Hope 70 acre campus. Avoiding infections.
- Then I have a new immune system, maybe a new blood type. Ideally no tumors.
I’m not excited, though this has been the Next Goal for several months. It’s hard to consider being away from home and friends for four months. And it won’t be exactly ‘pleasant’ in the process. The agony of not being at work has long since faded into the comfort of no work stress and now the novelty of time off is pretty shot. I don’t fear roll of the dice for an 80% survival rate on the process. I’m going in at a good weight. The odds of a cure are about 50/50 and the law of averages is in my favor after missing the targets the last few years. Plus, I kick ass. So there.
Things are just hard. Harder than, before.
Harder to motivate. Harder to stay in action. More intimidating. Molehills look like mountains.
Feels like heartbreak. You probably know such a time.
<sigh> Tired of waiting. Don’t want to be a waiter. Want to be a doer.
I’m not promoting or vouching for this. Nor am I mocking or disregarding it.
Another line of inquiry… http://www.healingcancernaturally.com/
Healing Cancer Naturally is based on three fundamental “credos” and commitments:
1 The human body is designed to be self-healing and will beautifully do its assigned task if we properly support and/or don’t hinder it in the performance of this basic function. This is why the overwhelming majority of Healing Cancer Naturally’s pages is devoted to diet, detoxification, and mental, energetic and spiritual factors in healing and health.
2 Information and help should be made available to anyone afflicted with cancer or other illness, regardless of the size of their pocketbook. This is why Healing Cancer Naturally provides all its potentially life-saving information for free rather than selling part of it in book form, and asks for donations and other support instead. That is also the reason why simple and inexpensive “DIY” ways people have used to heal from cancer get top priority while expensive “alternatives” to conventional treatment (and there are some very expensive ones indeed) will either be ignored or mentioned only on the side.
3. Healing Cancer Naturally believes that any challenge, be it in the area of health, relationships and/or finances, can (and optimally perhaps should) be used as a personal growth experience, allowing the person undergoing and eventually victoriously overcoming the challenge to arise from it not only healthier but also wiser and a better person than ever before.
Good news. The bad boy tumors are half as active and the small ones are “resolved”. YES! Now the question is… good enough for a transplant? Stay tuned.
EXAM: PET WHOLE BODY W/CT W/O CONTRAST
HEAD: Normal cranial activity. (ed: yeah, right)
NECK: Moderate improvement in size and markedly improved hypermetabolic activity of previously described left cervical level V & VI adenopathy with maximum SUV now 2.5 (previously 6.4). Normal activity in seen in the salivary glands, tonsils, tongue, and laryngeal muscles.
CHEST: Marked improvement in superior mediastinal hypermetabolic adenopathy with conglomerate nodal mass persisting but now demonstrating maximum SUV of 4.7 (previously 8.9). Expected degrees of blood pool, vascular wall and cardiac activity are seen. Resolution of previously described prevascular mediastinal and diaphragmatic/pericardial hypermetaboic lymph nodes.
ABDOMEN: Normal heterogeneous liver activity is present. There is expected activity noted within the kidneys, ureters and bowel.
PELVIS: Physiologic expected bowel and bladder activity is noted. New intense left pelvic wall focus appears related to an intraluminal distal ureteral bolus of excreted FDG agent.
BONES/EXTREMIIES: Normal bone marrow activity is noted.
IMPRESSION: Marked improved cervical and thoracic disease, as described above.
I’ll send 10 paper cranes to the first person who can explain the pelvis results.
Not the worst bottom of the chemo cycle but definitely one of the longest and moodiest. I’ve been away from house and supplements due to a fantastic remodel of the two main rooms of the house. Terrible timing, great results. The steroid up’s are great and the downs are just sad, sad, sad. Already had a transfusion and expect another tomorrow.
PET scan today. Probably have some news on Monday. Knockin’ on the door to Duarte (City of Hope) once again.